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DCIS is a Cancer and don't let anyone tell you different - My New Therapy - What's it gonna be?

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DCIS is a Cancer and Don't let anybody tell you it's not.

In 1996 I was Diagnosed with Breast Cancer, DCIS, Ductal Incarcenoma In Situ, whish means a localized Cancer. My cancer was contained in the milk ducts and as far as my surgeon was concerned not serious at all and just a lumpendectomy and some radiation and I would be fine.

Well I had a partial mastecomy after that and a couple of bioplsies becuase I kept getting signs of calcifications on my mammogram follow ups. Then it happened not even two years later a reoccurance of my cancer but a higher grade, now I had to make some decisions more peices off my breast or take off the breast. Well they took magnified veiws to discover I had another type of cancer starting up in the right breast also, my cancer started in the left I should say. The cancer in the right was LCIS which is Lobular cancer in situ. now it was in the lobs of the breast not as serious as ductal carcenoma and all still a pre cancer but they are treating like a cancer non the less I am having radiation just the same as if I had cancer that was not a pre cancer.

Anyways I had enough already in the first two years and I opt to have the breast removed after a couple of opinions and one surgeon told me if not take it off this thing would come back and bit me in the ass were her exact words.

This is a long story and I will continue another day and I have to still find out what therapy is next for me so the story is not finished not by a longshot . thats just it for now, thanks for listening an this is gonna do me good to get the whole thing off my chest from the start because it has become such a mess from a simple pre cancer that wasn't suppose to kill me has come back with a vengence. I will explain everything in detail I promise.

Her 2neu Postive Cancer you think I would have had those results by now, NOT my name is MURPHY pleased to meet you.

All I did was ask what was my status?
Assuming they had already did this test long ago, or they couldn't be making decisions about my cancer therapy. Was I wrong, the doctor says, oh yes they have to be here just hang on a minute I will look through your chart for the results and see. While I just knew in my heart they weren't there, but why did I have to be right again?
 
She couldn't find the results, so she ordered this test for my Her 2/neu status, now this test will tell them if my cancer is more aggressive or if it happens to start getting so aggressive can I be offered Herceptin, Only 25% of Breast Cancer Patients are postive keep this in mind.
 
I wait two months the results come in and the doctor tells me they came in but nothing on it. I wonder how can a big hospital make a mistake like that this is Hamilton hospital nothing to sneeze at, I mean this test can't be done in the hospital it has to be done on the original tumour or lucky for me I have just had some cancerous ovaries taken out this year so they can test them.
 
Well after waiting two months or more, the results are in and I am deffinately positive with a 3+, and then I read up on it a bit and it makes so much sense to me now.
 
I am ER+ a bit the other onc says to me so they put me on the line of anti-hormonal therapy that I am suppose to be on but I don't respond to Tamoxifen hmmmm, do you think they would have known right then maybe this patient (not chart) is her 2 positive?
 
Then they tell me I am PR- another sign I could be her 2 positive hmmm, why wouldn't they just do the test its a matte of writing on a paper to another hospital just like a blood test at any hospital only takes five minutes to do.
 
All the signs were there, I had no response to Tamoxifen as a first line of treatment
When my er/pr status came in I was er a bit positive his exact words and pr neg
and I am on my second anti-hormonal therapy duh wake up and smell the coffee here if it can happen it will happen to me, you have got that yet.
 
On the 27th of December I find out if I recieve chemo therapy and Herceptin or Herceptin alone now as a line of therapy. Go figure two years later they have figured out what I have maybe. wouldn't it be funny and I always have this dream if they woke me up and said Cherl your nightmare is over, you can go home from the sleep clinic now you do have some terrible sleep issues, when you dream, dream BIG I always say.
Can I go home now???
 
I really don't know who reads this space, but that felt good getting that off my chest.
 
And have a merry christmas from my province to your state or province or country.
 
From my home to yours, across the miles and over the hills, have a happy holiday 
 
  

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Smile - amazing what a smile can do....

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"Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around."

Anthony J. D'Angelo

 "We shall never know all the good that a simple smile can do."

Mother Teresa of Calcutta

 

  

Ask the Expert Conference On-line Breast Cancer.org

Dear breastcancer.org Community Member:



Are there questions you've had that our previous Ask-the-Expert conferences haven't answered? Then this is the conference for you.



Have you ever needed to know:



How your mother's breast cancer affects your own risk?



How to manage hot flashes resulting from hormonal therapy?



If yoga can really help reduce stress?



What Reiki is all about?



If there's any way to balance radiation treatments, follow-up appointments, your job, and your family's needs?



Join the conference next Wednesday, September 20th between 8:30 p.m. and 10:00 p.m. Eastern Daylight Time (EDT)* (1:30 a.m. to 3:00 a.m. GMT September 21st), where Dr. Ruth Oratz and Dr. Beth Baughman DuPree will answer your questions. We'll try to include as many of your questions as we can during the 90-minute conference.



Ruth Oratz, M.D., F.A.C.P., our guest speaker, is a medical oncologist and Associate Professor of Clinical Medicine at New York University School of Medicine. She founded The Women's Oncology & Wellness Practice in New York City, where she specializes in treating women with breast cancer and other malignancies, as well as those at risk for cancer. She is committed to helping women with cancer continue to live full, active lives using flexible treatment programs that address women's concerns about career, family life, relationships, and sexuality. Dr. Oratz has been listed in Redbook Magazine's "The Best Doctors in America" and in New York Magazine's "The Best Doctors in NYC." Dr. Oratz is also a member of the breastcancer.org Professional Advisory Board, which you can read about here:


http://www.breastcancer.org/pab.html



The conference moderator will be Beth Baughman DuPree, M.D., F.A.C.S. Dr. DuPree, a general surgeon who focuses her practice on breast cancer care, believes that bringing together complementary therapies with state-of-the-art, leading-edge technology can lead to better outcomes--even in people with life-threatening disease. Dr. DuPree encourages her patients to seek complementary therapy, whether it is through clinical psychological therapy, spiritual assistance, exercise programs, nutritional counseling, Reiki, yoga, or massage. She has won numerous awards for her medical and humanitarian work. Dr. DuPree received her medical degree from Hahnemann University in Philadelphia in 1987 and recently published a book titled The Healing Consciousness. Dr. Dupree is also a member of the breastcancer.org Professional Advisory Board.



To join the conference, go to www.breastcancer.org any time between 8:30 p.m. and 10:00 p.m. EDT* on September 20th and click on the "Join Conference" button. No special software is required. A transcript of the conference will be posted on our site by September 28th.



I look forward to having you join our Ask-the-Expert Online Conference next week!



Take care,



Marisa



Marisa Weiss, M.D.

President and Founder

www.breastcancer.org



*breastcancer.org welcomes conference participants from all over the world. To help you figure out when the conference will take place in your time zone, you can compare your local time to the current time on the East Coast of the United States. See:

http://www.breastcancer.org/time.php
 

                   http://www.breastcancer.org/dia_detec_exam_5step.html

                        click on the image to learn how

Scars - from The Cancer Crusade Cathy Cawthon

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Your scars are beautiful.
They are the brushstrokes
in the masterpiece
that is your life.

Kathy Cawthon

(Editor's note: We have had many requests from subscribers to re-run a few of our most popular affirmations so they can print them out and share them with friends and family who don't have computer access. We are happy to do that over the course of the next several weeks.)

Ancient legend tells of the powerful Amazons, a race of one-breasted female warriors. These fierce fighting women, known for their skill as archers, underwent voluntary mastectomies so their breasts would not interfere with their aim. Their very survival depended upon the radical surgery.

Legend also tells of the Scythian culture in which women were expected to fight alongside the men. A mastectomy of the right breast was performed on female infants to prevent weakening of the pectoral muscle on that side. This ensured the girls would be able to brandish a sword with power and skill.

Scholars debate whether there is any truth behind these popular stories, but – true or not – the tales provide us with a thought-provoking way in which to reframe the way we see our scars.

Instead of looking at the scars on our bodies as reminders of illness and weakness, we could look at them as evidence that illness and weakness were removed from our bodies, making us more powerful than we were before. We could take pride in our scars because they are proof of battles we have fought and won. They speak of our courage and resolve. They tell the stories of our lives.

As we age, our faces and bodies naturally develop lines and wrinkles in addition to the scars that result from accidents and surgeries. Instead of fighting the lines and wrinkles with cosmetic surgeries and hiding our battle scars as if they are shameful or embarrassing, why not look at them as evidence of the rich collection of experiences that have shaped our characters over time
and made us who we are today?

Each of us is a miracle, and each of us is a masterpiece of the Creator.

One-of-a-kind. No two alike. A singular work of art
full of power and promise.

Rejoice in all of your brushstrokes!



Heavenly Father, help me to remember that I am Your creation

and that everything You have created is perfect and beautiful.

 Amen

Roger and Kathy Cawthon

The Cancer Crusade

A Bend in the Road

A Bend in the Road

When we feel that we have nothing left to give
And we are sure that the song has ended,
When our day seems over and the shadows fall
And the darkness of night has descended,
Where can we go to find the strength
To valiantly keep on trying?
Where can we find the hand that will dry
The tears that the heart is crying?
There's but one place to go and that is to God,
And dropping all pretense and pride,
We can poor out our problems without restraint
And gain strength with him by our side.
And together we stand at life's crossroads
And we view what we think is the end,
But God has a much bigger vision,
And he tells us it's only a bend,
For the road goes on and is smoother,
And the pause in the song is a rest,
And the part that's unsung and unfinished
Is the sweetest and richest and best.
So rest and relax and grow stronger_
Let go and let god share your load.
Your work is not finished nor ended_
You've just come to a bend in the road.

(Helen Steiner Rice)



 

I Hope You Dance

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'I Hope You Dance...
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This was written by an 83-year-old woman to her friend. *The last line says it all. *

Dear Bertha,

I'm reading more and dusting less. I'm sitting in the yard and admiring the view without fussing about the weeds in the garden. I'm spending more time with my family and friends and less time working.

Whenever possible, life should be a pattern of experiences to savor, not to endure. I'm trying to recognize these moments now and cherish them.

I'm not "saving" anything; we use our good china and crystal for every special event such as losing a pound, getting the sink unstopped, or the first Amaryllis blossom.

I wear my good blazer to the market. My theory is if I look prosperous, I can shell out $28.49 for one small bag of groceries. I'm not saving my good perfume for special parties, but wearing it for clerks in the hardware store and tellers at the bank.

"Someday" and "one of these days" are losing their grip on my vocabulary. If it's worth seeing or hearing or doing, I want to see and hear and do it now

I'm not sure what others would've done had they known they wouldn't be here for the tomorrow that we all take for granted. I think they would have called family members and a few close friends. They might have called a few former friends to apologize and mend fences for past squabbles. I like to think they would have gone out for a Chinese dinner or for whatever their favorite food was.

I'm guessing; I'll never know.

It's those little things left undone that would make me angry if I knew my hours were limited. Angry because I hadn't written certain letters that I intended to write one of these days. Angry and sorry that I didn't tell my husband and parents often enough how much I truly love them. I'm trying very hard not to put off, hold back, or save anything that would add laughter and luster to our lives. And every morning when I open my eyes, tell myself that it is special.

Every day, every minute, every breath truly is a gift from God.

If you received this, it is because someone cares for you. If you're too busy to take the few minutes that it takes right now to forward this, would it be the first time you didn't do the little thing that would make a difference in your relationships? I can tell you it certainly won't be the last.

Take a few minutes to send this to a few people you care about, just to let them know that you're thinking of them.

"People say true friends must always hold hands, but true friends don't need to hold hands because they know the other hand will always be there."

Life may not be the party we hoped for, but while we are here we might as well dance

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Instant Karma

Instant Karma by Barbara Ann
 
Never cut what can be untied.
Search for the middle ground in all things.
Live and act from the understanding that all things change.
Take a specified amount of time each day for meditation,
prayer, journal writing or inspirational reading.
Become aware of the fear that is influencing you.
Do not resist a nap if it has been a tiring day.
Be the first to forgive.
Learn the difference between needs and wants.
Spend as long as necessary listening to someone talk about what's troubling them.
Knowledge of your own mortality is the greatest gift God could ever give you.

Finding Meaning in Our Grief - from the cancer crusade

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This beauty taken and edited by Maria/louloulemon, my biggest helper on this space, thanks Maria, your the best, hope your having a great time on your vacation.

when we finally know we are dying,

and all other sentient beings are dying with us, 

we start to have a burning,

almost heartbreaking sense of the fragility

and preciousness of each moment and each being,

and from this can grow a deep, clear, l

imitless compassion for all beings.   

by Sogyal Rinpoche

During my cancer experience, I cringed when people said, "Don’t worry. God won’t give you more than you can handle." The fact of the matter is that sometimes people do get more than they can handle, and God didn’t "give" them any of it. I believe in a God who is a gentle, loving father. Gentle, loving fathers don’t hurt and kill their children. God didn’t give me cancer any more than He directed a madman to plant that roadside bomb, broke off that tree limb and allowed it to fall on a little child, burst a vessel in the young mother’s brain or caused the collision that took the doctor’s life. Such tragedies are caused by biological glitches, horrific accidents
and man’s inhumanity to man

 

The Survivor Movie has been viewed more than 280,000 times in every state in the United States and in more than 48 countries
around the world.

Please keep it going by using the forwarding link at the end of the movie.
This movie and these affirmations are our gifts to you. We hope you will share them by forwarding to everyone for whom
you feel they might have meaning.

http://www.TheSurvivorMovie.com

 

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Cozycomfyc​ouchwrote:
Cherl, I miss you and I pray every day that you are okay. I truly miss you. God bless you!
Sept. 28

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Cherl playter

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Diagnosed with Breast Cancer in the left breast in 1996,
reoccurance in 1998 in both breasts of DCIS And LCIS,
bilateral mastectomies in 1998,
reconstructive Breast Tramflap surgery in 2001,
reoccurance on the lung of Stage VI cancer in April 2005, LIVING WITH BREAST CANCER.
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read about chemotherapy and it's side effects before you go for it.
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