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Her 2neu Postive Cancer you think I would have had those results by now, NOT my name is MURPHY pleased to meet you.All I did was ask what was my status?
Assuming they had already did this test long ago, or they couldn't be making decisions about my cancer therapy. Was I wrong, the doctor says, oh yes they have to be here just hang on a minute I will look through your chart for the results and see. While I just knew in my heart they weren't there, but why did I have to be right again?
She couldn't find the results, so she ordered this test for my Her 2/neu status, now this test will tell them if my cancer is more aggressive or if it happens to start getting so aggressive can I be offered Herceptin, Only 25% of Breast Cancer Patients are postive keep this in mind.
I wait two months the results come in and the doctor tells me they came in but nothing on it. I wonder how can a big hospital make a mistake like that this is Hamilton hospital nothing to sneeze at, I mean this test can't be done in the hospital it has to be done on the original tumour or lucky for me I have just had some cancerous ovaries taken out this year so they can test them.
Well after waiting two months or more, the results are in and I am deffinately positive with a 3+, and then I read up on it a bit and it makes so much sense to me now.
I am ER+ a bit the other onc says to me so they put me on the line of anti-hormonal therapy that I am suppose to be on but I don't respond to Tamoxifen hmmmm, do you think they would have known right then maybe this patient (not chart) is her 2 positive?
Then they tell me I am PR- another sign I could be her 2 positive hmmm, why wouldn't they just do the test its a matte of writing on a paper to another hospital just like a blood test at any hospital only takes five minutes to do.
All the signs were there, I had no response to Tamoxifen as a first line of treatment
When my er/pr status came in I was er a bit positive his exact words and pr neg
and I am on my second anti-hormonal therapy duh wake up and smell the coffee here if it can happen it will happen to me, you have got that yet.
On the 27th of December I find out if I recieve chemo therapy and Herceptin or Herceptin alone now as a line of therapy. Go figure two years later they have figured out what I have maybe. wouldn't it be funny and I always have this dream if they woke me up and said Cherl your nightmare is over, you can go home from the sleep clinic now you do have some terrible sleep issues, when you dream, dream BIG I always say.
Can I go home now???
I really don't know who reads this space, but that felt good getting that off my chest.
And have a merry christmas from my province to your state or province or country.
From my home to yours, across the miles and over the hills, have a happy holiday
Smile - amazing what a smile can do....
"Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around."
Ask the Expert Conference On-line Breast Cancer.orgDear breastcancer.org Community Member:
Are there questions you've had that our previous Ask-the-Expert conferences haven't answered? Then this is the conference for you. Have you ever needed to know: How your mother's breast cancer affects your own risk? How to manage hot flashes resulting from hormonal therapy? If yoga can really help reduce stress? What Reiki is all about? If there's any way to balance radiation treatments, follow-up appointments, your job, and your family's needs? Join the conference next Wednesday, September 20th between 8:30 p.m. and 10:00 p.m. Eastern Daylight Time (EDT)* (1:30 a.m. to 3:00 a.m. GMT September 21st), where Dr. Ruth Oratz and Dr. Beth Baughman DuPree will answer your questions. We'll try to include as many of your questions as we can during the 90-minute conference. Ruth Oratz, M.D., F.A.C.P., our guest speaker, is a medical oncologist and Associate Professor of Clinical Medicine at New York University School of Medicine. She founded The Women's Oncology & Wellness Practice in New York City, where she specializes in treating women with breast cancer and other malignancies, as well as those at risk for cancer. She is committed to helping women with cancer continue to live full, active lives using flexible treatment programs that address women's concerns about career, family life, relationships, and sexuality. Dr. Oratz has been listed in Redbook Magazine's "The Best Doctors in America" and in New York Magazine's "The Best Doctors in NYC." Dr. Oratz is also a member of the breastcancer.org Professional Advisory Board, which you can read about here: http://www.breastcancer.org/pab.html The conference moderator will be Beth Baughman DuPree, M.D., F.A.C.S. Dr. DuPree, a general surgeon who focuses her practice on breast cancer care, believes that bringing together complementary therapies with state-of-the-art, leading-edge technology can lead to better outcomes--even in people with life-threatening disease. Dr. DuPree encourages her patients to seek complementary therapy, whether it is through clinical psychological therapy, spiritual assistance, exercise programs, nutritional counseling, Reiki, yoga, or massage. She has won numerous awards for her medical and humanitarian work. Dr. DuPree received her medical degree from Hahnemann University in Philadelphia in 1987 and recently published a book titled The Healing Consciousness. Dr. Dupree is also a member of the breastcancer.org Professional Advisory Board. To join the conference, go to www.breastcancer.org any time between 8:30 p.m. and 10:00 p.m. EDT* on September 20th and click on the "Join Conference" button. No special software is required. A transcript of the conference will be posted on our site by September 28th. I look forward to having you join our Ask-the-Expert Online Conference next week! Take care, Marisa Marisa Weiss, M.D. President and Founder www.breastcancer.org *breastcancer.org welcomes conference participants from all over the world. To help you figure out when the conference will take place in your time zone, you can compare your local time to the current time on the East Coast of the United States. See: http://www.breastcancer.org/time.php click on the image to learn how Scars - from The Cancer Crusade Cathy CawthonYour scars are beautiful. One-of-a-kind. No two alike. A singular work of art
and that everything You have created is perfect and beautiful. Amen Roger and Kathy Cawthon The Cancer Crusade
A Bend in the RoadA Bend in the Road When we feel that we have nothing left to give And we are sure that the song has ended, When our day seems over and the shadows fall And the darkness of night has descended, Where can we go to find the strength To valiantly keep on trying? Where can we find the hand that will dry The tears that the heart is crying? There's but one place to go and that is to God, And dropping all pretense and pride, We can poor out our problems without restraint And gain strength with him by our side. And together we stand at life's crossroads And we view what we think is the end, But God has a much bigger vision, And he tells us it's only a bend, For the road goes on and is smoother, And the pause in the song is a rest, And the part that's unsung and unfinished Is the sweetest and richest and best. So rest and relax and grow stronger_ Let go and let god share your load. Your work is not finished nor ended_ You've just come to a bend in the road. (Helen Steiner Rice) I Hope You Dance'I Hope You Dance... Instant KarmaInstant Karma by Barbara Ann
Never cut what can be untied.
Search for the middle ground in all things.
Live and act from the understanding that all things change.
Take a specified amount of time each day for meditation,
prayer, journal writing or inspirational reading.
Become aware of the fear that is influencing you.
Do not resist a nap if it has been a tiring day.
Be the first to forgive.
Learn the difference between needs and wants.
Spend as long as necessary listening to someone talk about what's troubling them.
Knowledge of your own mortality is the greatest gift God could ever give you. Finding Meaning in Our Grief - from the cancer crusadeThis beauty taken and edited by Maria/louloulemon, my biggest helper on this space, thanks Maria, your the best, hope your having a great time on your vacation. when we finally know we are dying, and all other sentient beings are dying with us, we start to have a burning, almost heartbreaking sense of the fragility and preciousness of each moment and each being, and from this can grow a deep, clear, l imitless compassion for all beings. by Sogyal Rinpoche
The Survivor Movie has been viewed more than 280,000 times in every state in the United States and in more than 48 countriesaround the world. Please keep it going by using the forwarding link at the end of the movie. This movie and these affirmations are our gifts to you. We hope you will share them by forwarding to everyone for whom you feel they might have meaning. http://www.TheSurvivorMovie.com another "A Bend in the Road"This is a digital imagery or mammography and it's not scarry at all, trust me I have been there. What is scarry is having cancer. Trust me I am there. So no excuses, don't hesitate just go and get checked If you haven't and your around the 40 year old mark I would ask my doctor for a base mammogram now so they have something to look back on when you do start getting them regularly. If you would prefer have an ultrasound for now but as soon as possible I would say after 40 get a base mammogram and go from there but always remember you know your body better than almost any one else ( my husband found my lump) that's why I say almost anyone else, so always use BSE breast self examination as a general rule at least once a week in the shower to check for any lumps or bumps or any breast changes.
The SisterhoodThe SisterhoodCopyright© By Linda Nielsen Many women have found a lump, But to hear the doctor say the worst, No one knows the thoughts the fears, It's a special group who knows this scare, To help you through the beginning stage They'll talk you through the loss of hair, Through relentless tests that never end, They'll gather together for there's lots to do, It's a genuine bond for they truly care, Cancer Fighting Foods Hmmmm!!!
Foods That Fight Cancer
Nutrient-rich foods are packed with compounds that protect your cells from the type of damage that can lead to cancerous mutations. While all fresh fruits, vegetables, beans, and whole grains are beneficial, the following foods are especially recommended for their cancer-fighting properties:
Those who have had a cancer diagnosis should check with their doctors regarding soy products. Soy is very healthful for the majority of people, but may not be right for survivors of certain cancers. More Important Nutrition Advice Experts now recommend that those who have had a cancer diagnosis or who are at high risk should eat 9 servings of fruits and vegetables every day instead of the usual recommendation of 5. That's right: 9! And that means heavy on the vegetables, as in no more than 4 fruits. Following this advice will strengthen your immune system and lower your cancer risk as well as your risk of heart disease and other serious illnesses and conditions.
Read more about Cancer Fighting Foods here
Kick off the week by participating in the nation's largest preventive care check-up event! National Women's Check-Up Day is on Monday, May 15, 2006. Community health centers, hospitals, and other health care providers across America will participate in this event by offering preventive health screenings to women. A Special Tag from Lesley read her Story - From Msn Spaces One of Such Inspiration
Thank You So Much Lesley For the Beautiful Tag,
I Know you are Having a Hard Time also and My prayers are with you, this Angel is also watching over you. I hope you get the good results as well, I know how hard it is waiting that makes two of us. Just know that I am thinkin about you As I have always said "Breast Cancer Patients are soul Mates for Life" I will be Practicinglucky4ursake, and My space is Full of HOPE. Read Lesley's amazing story on her space, there is a link for her space on my practicinglucky4mysake space. it is one of Inspiration, it took great courage to write and she has a miracle baby to show for it because not only did Lesley go throught Breast Cancer she was also Pregnant at the time, and told not to continue with her pregnancy but she did and she has been doing just Greatttt. Keep it up Lesley. This is just a Bump in the Road, I know it's hard not to think the worse but you have so muchsupport here, use it, talk to your friends that are here for you. ONLINE support is was got me through a very rough year. A very well planned trip you have coming up is a very good thing and well deserved. good you I wish you all the best. Wouldn't it be so nice to be free of all the worry of tests and results and waiting and, and, and?????
This kind of says it all, the worried look on this angels face and the arms around her breasts, shows the fear of the unknown and like she is saying "no more!!!" I think that's what it says to me and a picture says 1000 words. I luv angels but if you look close at facial expressions and things in the background of these beautiful pictures you see alot more than the beautiful angel. JUST MY OPINION means nothing. huh!! When Lesley first made me a Breast Cancer Tag and believe me right away it had a special quality, but to me the fairy looked worried but Lesley said "no, that is you and you are sitting on top of the cancer bracelets which symbolizes that you are on top of things" and when I looked at it that way, wow- that siggy *signature picture-part of you - took on a whole new meaning, then other people with space causes started wanting the same type of banncers but you can't top Lesley's because it is the Original idea, it shows the worry I know what Lesley was trying to say, she didn't want me to worry, that's the last thing she wants me to do. She knows what its like thats for sure, she is the only one I talk to on spaces that has been through breast cancer that I know of so far. Now I have no communication with Carolyn my only person who understands doctor talk, she should have been a doctor (funny thing that's what my family always said about me, because when the doctor ever said anything about my health, I always read til I was blue in the face, this was pre-cancer days, and the same with my kids always felt I had to get to the bottom of things),Carolyn understands my feelings so much I swear she is in my head half the time, I really do, she is so thoughtful and understanding and only 22 years old wise way beyond her years, and she does want to help people in this life, I just hope she knows what a wonderful job she has done in lifting my spirits each and every time I have talked to her or recieved an email or any word from her, she is like the sunshine on a rainy day, just brightens up my day, I hate to see her hurting and she is, but she is very young and I hope that all this hurt will pass and she can finally be happy at some point in her life, I know she will be because she is so deserving of happiness and harmony in her life, it will come but after everything she has been through it is gonna take some time, its not from lack of trying, she is a trooper and missing her mum just keeps getting to her, and I can understand that, she was so young and so were her sisters and what a confusing time that was for all of them, I know she will make it though. Cause tiggers like to bounce and this tigger is gonna bounce back, you will see, Now there's my good long time friend Maria :) my long time dear dear friend she is always there for me always always no matter what is going on my life she is there, If I was coming to Toronto tomorrow she would meet me for coffee she is so sweet that angel. She Had a very special Aunt that passed away and did a very special blog with the poem from Helen Stein "Bend in the Road" I asked her if she made tables and that was after several attempts to look at spaces I was very new, Maria taught me almost everything about the space there is to learn she certainly taught me how to put the pictures and how to show your space so that is eyecatching. It is her artistic spark that attracked me to her space and her friendiness of course she was so easy to talk to and she made me that table with the poem in it and I will never forget that day and thinking yes this is all this is "A Bend in the Road" and she has really helped me to think positive many days. When all that I can think of is when am I gonna die, or I wonder how long I have, or I wonder if I will ever see grandchildren??? That is a biggie for me? I luv babbies but I am sorry, I am partial to my blood and I can't wait for my kids to have kids and I really don't want to miss out on that, that is most important to me right now, I wish they would hurry up, or I hope I last 4-ever that would be even better. I had a 5% chance of my cancer coming back so if the odd's are even 5% for remission than I think my odd's are pretty good. Wouldn't you think that way at this point. I have put my type of Cancer on my space now it's called DCIS its not even classed as a Breast Cancer it is a pre-cancer that they take out of you because they have no way of telling who will get the invasive type of cancer from this and who won't, well pick me. (they did, those nasty little cells, I got them all out, but one was sleeping all these years from what I understand and just woke up now and decided to spread, nice one. I could have had a good insurance policy I didn't know that. It's stage 0 at the time, but I had all the same therapies as someone with a stage 2 or 3 cancer just no chemotherapy, because the cancer is localized. It was so hard to understand and still is, my cancer was in the ducts and when the breasts are gone so should the cancer be, but when it came back the second time it came back at a higher grade. I just found this out. I had no lymph nodes removed until I decided to have bilateral mastectomies because it kept coming back as pre-cancer but cancer non the less, and the surgeon kept telling me it was a very controversal cancer, but I wouldn't die from it. I will never forget him saying I wouldn't die from it. It's not an invasive cancer therefore, the DCIS stands for DUCTAL INCARCENOMA IN SITU no the way it was explained to me is the IN SITU means localized so its not invasive meaning stage 0 and no lymph node involvement so, no chemotherapy and no test on the lump and no tests period except take it out and have some radiation in case (this I just found out) some cells escaped before surgery the first time meaning the initial lumpendectomy,which is what they are saying happened to me 9 years later, then my cancer after my lumpendectomy came back not more than two years later,and that is when I decided to have my breast removed because I seen for myself in the pathology report signs of LCIS which is LOBULAR INCARINOMA amongst other scarry things that indicated to me invasive or fast growing cells, but not to them, so I wasn't playing games, I did some research and said enough is enough, I have had enough of these little surgeries and they told me the radiation was just something to try, not something that would work, in the notes they said to each other I was a complicated case and that was enough for me, I said take them off, and then there will be no cancer in my breasts at all. I went to two surgeons of course for opinions one told me to get them off or this would come back and "bite me in the ass" That is the one I hired. She was such a nice doctor, I learned alot from her, she gave me all of my records when all was said and done like all doctors should and she did alot of fallow up, I even went back to her for a referral for my reconstructive surgery. She set me up with a really nice reconstructive surgeon in London Ontario, At London University Hospital, What a Great Learning Hospital and a Great Place to have to stay should you have to stay in Hospital for anything, everyone was excellent there, I was there for eight days after a fourteen hour surgery and every single doctor I see now says they did a wonderful job, as a matter of fact the new Pain doctor said to the new nurse she was training that I have the body of a teenager, what a nice compliment that was? too bad I didn't have the shape 25 yrs ago you know, now I don't have the energy to do anything and I have to say my daughter's clothes fit me real nice. I can wear anything now. I wish I could before, weight was always a big issue with me, up and down. My weight has been up to 180 lbs when I had my reconstructive surgery it is now 120 lbs and holding and that hasn't been easy. I was having severe pain and unexplained weight loss and they didn't see that as a sign that my cancer was back I was so mad when I found out, that Pain was the Cancer going right through my left side, and Its a terrible pain I can't even explain that pain, and I couldn't to the doctors either I went to so many pain specialists because I didn't want to be on any type of opiates and that's exactly what they were pushing Morphine and I hate the feeling on that stuff, just hate it. Bad enough I will never feel normal again, I don't even remember what that is like, and now I don't know if I am just plain sick or if its side effects from the medications they are giving me. I hate this but the alternative is not good either, it's been ten years this month August and I do have something to celebrate, its called living. I plan to do just that. The start of this whole thing I was a mess, I couldn't talk all I was doing was thinking and thinking, couldn't shut the mind off for nothing, I was listenening to relaxation tapes like there was no tomorrow, just days prior to that I was into my good old rock n roll, I was like day and night in that one week, and then this went on for weeks because tests that were suppose to have been done years ago to make decisions now were never done, and they had to give me meds by flipping a coin it seemed and I wasn't liking it after being told I was terminal, and being hooked up with hospice and pallitive care, not just cancer care anymore. Oh and a card for my local Cancer support center which closed down because it was built on a commercial zone. I couldn't believe the luck I was having, none at all. I didn't even want to buy a tv when it broke the same time, I thought what for? I don't watch it and how long am I gonna use it? Do I really need to waste my money on a stupid TV I was thinking?? Talk about total shock, it went on for about two months like that, staring into space all the time just thinking and thinking what about this and crying boy there is no end to tears I can vouch for that. I have to thank my friends here who have stuck by me when I have gone for my tests and my surgeries and my results and everything and always such nice comments as they wait patiently and very positively for the results and keep my spirits lifted. I can't thank you guys enough. and I know you know who you are.
Younger Cancer Patients More at RiskA Younger Women Under 45 Diagnosed With Breast Cancer has a higher risk of dying from the disease than older patients.
By Patricia Reaney
LONDON (Reuters) - Young women under 45 years old diagnosed with early breast cancer have a higher risk of dying from the disease than older patients, scientists said on Thursday. "The younger the woman, the poorer the chance of survival," said Dr Vincent Vinh-Hung, of University Hospital in Brussels. Breast is the most common cancer in women, with more than a million new cases detected worldwide each year. Most are in women over 50 -- the disease is rare in young women. But Vinh-Hung told Reuters that although only a small fraction of early breast cancers occur in young women, they account for a disproportionate percentage of deaths. In a study of 45,000 breast cancer patients presented at the 5th European Breast Cancer Conference in Nice, France, Vinh-Hung and his colleagues found that the odds of dying from breast cancer rose by 5 percent for every year that a woman was under 45 when diagnosed. They focused on women with early breast cancer which had not spread beyond the breast and whose tumors were less than 2 cm (0.8 inches) in size. Doctors had previously suspected that the poorer prognosis in young women was due to being diagnosed later with a more advanced cancer. Breast tissue in younger women is usually denser which can make detecting a tumor more difficult. Younger women may also ignore a suspicious lump in their breast thinking it is harmless or that they are too young to have breast cancer. But Vinh-Hung said the findings suggest that in young women, age, more than other factors, affects the chance of survival. He and his team suspect there may some type of unknown genetic damage that may increase the chances of developing the disease early and contribute to the poor prognosis in younger patients. A family history of breast cancer, early puberty, late menopause, not having children or having them late and genetic mutations are risk factors for breast cancer. Kylie Minogue Welcome back with love from your fansAlong with the officiated fund above, you may like to check the following resources for details about breast cancer, <>with ways you can help. |
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